Just had to share. I follow a blog called Mommies of Miracles. They are dedicated to supporting moms/families of special needs children. Every Monday they share a rare disorder and a story of a particular family and how they came to diagnosis along with treatments and therapies that have been helpful.

 I submitted our story of Lily's diagnosis of ESES a few months ago. I had the pleasant surprise of seeing Lily's beaming smile on their Facebook update this afternoon.

 Check out Mommies of Miracles for the whole story!

I pray that this can reach even one other mom who is desperately seeking these exact pieces of information to help her sweet child.