Off Topic

Generally this blog is meant to be about Lily and our adventures with Lily. But tonight I am going to use it to explain myself, mostly because this is the easiest route to reach so many of you that I care about and that care about me.

Over the last couple of months I have been on a crusade to figure out why I have been so stinking tired and worn out lately. To make a long story short the crusade led me to an endocrinologist who discovered I have an enlarged nodule on my thyroid. This is very, very common, especially in women. However, as with any enlarged nodule found any where in your body, it must be checked for cancer. I had a biopsy done this morning I will find out later in the week what the results are.

Mike very lovingly told me tonight that my attitude toward this whole ordeal may seem to others to be cold, uncaring, or seemingly unresponsive to the threat against my mortality. He held a mirror up for me to see myself as others may be seeing me, and I have to agree with him, that I am probably not clearly communicating my thoughts and feelings in a way that allows others to understand how I have come to deal with this. In most cases I haven't been communicating at all and this will be the first most of you are hearing of this.

If you were to ask me how I feel about this my general response has been "It is what it is." or "There's nothing to worry about until I get test results.". That's it, end of story.

Seems simple and straightforward to me. But apparently this isn't the reaction most people are expecting.

Let me begin by saying there have been so many times in my life when I have wept and cried and worried and wailed over things I was afraid would happen. And they never did. Then again, sometimes horrible things happened and I was entirely unprepared. This resulted in me feeling cheated out of my entitled to moaning, wailing, and gnashing of teeth - NOT!

I didn't feel one bit cheated. Over time I came to realize that the real cheating and stealing that was going on in my life was happening when I would spend countless hours, days, and weeks worry over things that I couldn't do anything about.

When Mike got sick, oh so many years ago now, I realized that every minute that I had him in my life was precious and that if I was going to have him for 6 more months or 60 more years, I didn't want to spend that time constantly worrying and fretting.
Now don't get me wrong, I still worry and have anxiety about all kinds of things every day. I am not some super woman who has everything under control. But I know who does. God has a perfect plan for my life, He sees the future, He has everything under control.

Have you ever had a passenger in your car start freaking out because they thought you, the driver, were going to hit or run into something? But because you were in the drivers seat you had a vantage point that they did not so you knew everything was going to be o.k. I am the passenger in this car ride called life. I have no idea where I am going or how to get there, but my Driver knows and I trust Him completely. The unexpected places He has taken me so far have been incredible and breathtaking. The route He took to get me to those places were not of my choosing but I would not undo one single twist or turn. What more amazing and incredible places might He take me if I quit trying to grab the wheel away from Him?

Psalm 62: 5-8
Find rest, O my soul, in God alone; my hope comes from him. He alone is my rock and salvation; he is my fortress, I will not be shaken. My salvation and my honor depend on God; he is my might rock, my refuge. Trust in him at all times, O people; pour out your hearts to him, for God is our refuge.

It is very, very doubtful that I have thyroid cancer. But even if I do God has a plan to use that in my life in some amazing way if I just let Him.

For those of you who feel better with statistics, 80% of thyroid nodules are non cancerous. Thyroid cancer is curable by removal of part or all of the thyroid.

Forgive me if my responses seem short, cold, or irreverent. They are not meant to be. In addition my clinical, practical, pragmatic approach to this situation, I very uncomfortable with being comforted, especially for something that I don't think I need to be comforted over. I appreciate the support of all my friends and family, but don't expect me to come cry on your shoulder right now. Not enough information yet. In the mean time I am just planning on loving every minute with my precious daughter and awesome husband, friends, and family.

Love, Jennifer

Connections of the Heart

As Lily ushers in her second year of life I can't help but think about how different her life is today compared to her life in China. Even as she makes miraculous strides in development, in many ways they serve as a stark reminder of just how extremely deprived and damaging her first year and a half of life really was. Something as simple as walking underneath a canopy of trees is a stunning and delightful experience for her. Yet with all of the new and beautiful things and experiences at her finger tips, she still withdraws to her private, personal shell (though less and less). And while it may seem like every parent's dream to have a child the rarely if ever cries, for me, it is a gut wrenching reminder that humanity proved to her early on that crying does no good and no one cares anyway.
Our little flower is getting stronger and healthier every day, but it will take a long time and constant, intense care and love to help her set her roots deep to give her the stability she will need to bloom in abundance.
And in answer to the many unspoken questions and concerns - yes we know Lily isn't doing all of the things normal 2 year olds do. No we are not oblivious to her delays, nor are we glossing over them and hoping they will just go away. I think many people are worried that we are simply blinded by love and don't see the reality of how significant her delays are - rest assured we know. What we do have is a strong and deep faith that God will help Mike and I help Lily reach the full potential the He has in mind for her. I don't even try to imagine what plans God has for her, because if I try to do that with my limited imagination I might unwittingly inhibit a potential that is beyond my comprehension.
I hope this posting doesn't seem heavy and depressing because it isn't meant to be. Lily is such a tremendous joy and blessing. Every day she teaches me new things about love, life, strength, determination, and above all else, faith and hope. The scripture that we started this journey with is even more true and fitting today than it was then: Hebrews 11:1

"Now faith is being sure of what we hope for and certain of what we do not see."

I cannot see the future, but my hope rests in God who brought about the miracle of this little girl in the first place and took us on the most amazing journey to unite us as a family.

New Month, New Adventures

Can we really be in March already?! Time gets screwed up when you have kids I am finding:-) It feels like just yesterday that we brought Lily home, and at the same time it feels like she has been with us forever.
Lily is changing so fast we can't even keep track of all of the progress she is making on a daily and sometimes hourly basis. She is getting so strong and she is really beginning to develop her own personality. She is sweet and quirky and a little goofy.
What can I say - we are so blessed by God to have this little firecracker of a girl in our lives. I can't even begin to describe what it is like to watch God working so directly and evidently in our lives - in her life.
Thank you God.

Jennifer

Praise God!

A lot changes in the course of 6 months! Last May/June we were looking at the file of a little girl who was stealing our hearts with her smile. A little girl who we were told had serious hearing loss and serious developmental delays and possibly mental retardation. We prayed a lot. God is this the little girl you have chosen for us? God are you sure we can handle all of these medical/developmental problems? What if she is too broken, God? What if we don't love her the way you do? We can't see the future, God, but we can see all of the big and scary what if's, so what if? We can't see where this is going God!

Back to the verse with which we started this journey:
"Now faith is the substance of things hoped for, the evidence of things not seen."

We could not see the beauty and purity of spirit that we have come to find that our Lily possesses. We could not see the inner strength she carries in her thin and delicate frame. We could not see her determination or her boundless joy and enthusiasm for life. We had no assurance of healing for her delays and physical difficulties.

Yet we hoped and prayed for all of these things.

On Monday Lily went for her hearing test. Not only can she hear in both ears, and pretty well at that, her hearing will be dramatically improved with the simple procedure of having tubes placed to remove fluid build up in her middle ear - a common problem that so many children have. She does have considerable fluid build up, and has probably had that most of her life. Because of her age and how long she has had difficulties the doctor will also do a more advanced, thorough hearing test at the same time as her tube placement to pinpoint exactly what she hears and the quality of that hearing. At this point it looks like any hearing loss she will retain after the tube placement will be minimal!

Lily is daily growing in strength and in personality:-) To think that we could possibly have missed the beauty and wonder of this little girl is an unbearable thought! Thank you God for giving us the faith we needed to trust in your plan for us and for Lily.

Jennifer

Poem

From Dear Abby's column today, a request for a reprint of a poem that had appeared in her column before:

The author, Edna Massimilla, wrote it after her daughter -- a child with Down syndrome -- was born.

I have always found its message to be very moving and, when I spoke to Edna, she told me it was written to emphasize that every creation is for a purpose. She's in her 90s now and still writing poems and songs -- especially for children with disabilities. Read on:

HEAVEN'S VERY SPECIAL CHILD

A meeting was held quite far from Earth.

It was time again for another birth.

Said the Angels to the Lord above --

This special child will need much love.

Her progress may be very slow,

Accomplishment she may not show.

And she'll require extra care

From the folks she meets down there.

She may not run or laugh or play,

Her thoughts may seem quite far away.

So many times she will be labeled

'different,' 'helpless' and disabled.

So, let's be careful where she's sent.

We want her life to be content.

Please, Lord, find the parents who

Will do a special job for you.

They will not realize right away

The leading role they are asked to play.

But with this child sent from above

Comes stronger faith, and richer love.

And soon they'll know the privilege given

In caring for their gift from heaven.

Their precious charge, so meek and mild

Is heaven's very special child."

******************

While we feel quite confident at this point that Lily will overcome all of the delays and difficulties she is currently facing, this poem gets to the heart of why we decided to take a "risk" on a special needs child. After three years of agonizing waiting and frustration God showed us that we were actually the ones with special needs. That we had hardened our hearts to His beautiful and wonderful creation. Once we allowed Him to repair our hearts we were finally able to receive the precious gift He had in mind for us. Lily is exactly what the poem says "so meek and mild" and she is most definitely "heaven's very special child." We are extra special blessed in understanding that God guided our path in such a way as to allow us to choose this little girl for our very own, simply out of the faith and love He put in our hearts.